What is Spinal Muscular Atrophy (SMA) anyway? The Muscular Dystrophy Association says "Spinal muscular atrophy (SMA) is a genetic disease affecting the part of the nervous system that controls voluntary muscle movement." Their website has a wonderful article giving in site into this condition. You can click on their name above to visit the site and read more.
Getting the diagnosis of Spinal Muscular Atrophy can be scary. What does it mean? Where do you go from here? Families of SMA is a great place to start. It is a network of families, doctors and other professional who can answer questions and lend support.
If you or someone you love is living with Spinal Muscular Atrophy we want to hear from you. Send your story to raisemestrong@yahoo.com. Feel free to include pictures. Stories and pictures will appear on our blog and Facebook page. Let others know what you are going through and help spread the awareness.
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